MK had her follow-up MRI last week and we met with the doctor yesterday to go over her MRI. We had great news - the syrinx (cyst) has indeed collapsed and her spinal fluid is flowing as it should. The decompression surgery worked and her cerebellum "tonsils" have plenty of room. The doctor said she should be fine from here on out and she can put this behind her.
As parents this has been a tough journey, there is nothing tougher then watching your child go through something like this. Emory University Hospital in Atlanta was outstanding and DR. Barrow did a great job.
Please feel free to contact me at any time if you have any questions that may help you or you family member get through a similar situation.
d263moore@gmail.com
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Please email me! I have a question about your blog :)
ReplyDeleteHeatherVonsj@gmail.com
Thank you so much for blogging about your daughter's experience. I recently found out I have Arnold Chiari malformation with syringomyelia. I am having surgery with Dr. Barrow on the 18th of Feb.
ReplyDeleteRachel
DeleteI just read your comment. Sorry, I do not check my Blog that often. I hope your surgery went well.